An Integrated Model of Care for
Complex Persistent Illnesses and Disability
The catastrophic illness care system does a great job of looking after people with catastrophic illness - heart attacks, fractures, emergencies requiring intensive care or surgery - but people with persistent illness and disabling conditions often experience difficulties in getting the help they need. Their needs are more complex and expensive institutions are not always the best place for them.
Invicta Health has launched a project to design an integrated community-based, model of care for patients in the Maritime provinces who suffer from complex persistent illnesses and disabilities, in particular, Lyme Disease. A complex persistent illness involves multiple symptoms, that require the attention of multiple health care providers, facilities and home support. It can involve self-management and/or complex social supports to address disabilities or functional limitations of persons suffering from these illnesses and disabling conditions. The vision is to create a technologically advanced, community-based centre that can coordinate the care and support they need in the community but also connect them to health authorities, their providers and education and research programs.
The project will involve patients from each of the three Maritime provinces as well as various health service providers who are actively involved in treating patients with complex persistent illnesses and disabilities or yet undiagnosed disease. The first phase of the project is expected to take approximately 4 months. With the support of Mt. Allison University, interviews will be videotaped of patients who have experienced a complex persistent illness and have either had a disease accurately diagnosed and treated or not. The interviews will be edited into a short documentary film that will form the basis of dialogue at a symposium of family physicians, nurses, medical specialists, and allied health practitioners such as physiotherapists, naturopaths and osteopaths to co-design optimal protocols, referral methods and follow-up procedures for patient with these conditions
The project will hopefully create a deeper level of awareness of the needs of both patients and providers and integrate efforts to help patients regain energy levels, restore function, improve mobility, reduce pain and other factors that limit quality of life.
If you or someone you know is interested in learning more or participating in this project, please contact:
firstname.lastname@example.org or call: 506 536-0314.